It’s Never Boring.

Dull moments. What are those?

Recovery has gone fairly well. No issues with her feeling uncomfortable, and she is still able to play as long as she knows her limits.

But, yesterday, I sent her off to school, got to work, & no more than settled into my desk when I got a phone call from her school. Of course, I answer in a panic- as one does when their child has just had a major surgery and is epileptic. The nurse explained that Mei complained of seeing 4 of everything, her head hurt, she was saying things that made no sense, and her pupils were non-responsive. So an absent seizure. A breakthrough. A lot of hustling around to get her to a comfy place where she can recover and be in a place she knows. Her post-ictal stage was long, she also slept until 4 pm—her poor little body.

Tonight is a wound check appointment to make sure everything is healing as it should, and visually, the doctors are seeing things as they want to see them.

Tomorrow will then be the big day! Another trip up to Seattle, where her device will be turned on!! Not sure what that will look like, feel like, or sound like, but we’re all pretty excited. It seemed to be good timing, in a learning kind of way, that yesterday she had a seizure and talked about how it made her feel embarrassed at school. It allowed us to tell Malia that next time that feeling happens and things go into triple vision, she can swipe her device and tell her brain to ‘KNOCK IT OFF ‘. Malia was instantly happy and more at ease, feeling in control of her body.